My name is Julian Goliński, I am 10 years old. I have just completed the 5th grade at Primary School No. 3 in Brzeziny. In the future, I would like to become an actor because of my sense of humor. In the summer of 2024, my left leg started hurting for no apparent reason. The pain returned approximately once a month and was so severe that I could not sleep or walk. We visited the Emergency Department several times, but doctors did not find anything concerning. It was only an X-ray examination that revealed a cortical bone defect. However, the pain continued, and after about six months and many tests, I was diagnosed with a rare bone disease chronic recurrent multifocal osteomyelitis (CRMO).

After almost a year of treatment, I started feeling pain in my other leg. We thought it was another CRMO lesion, but the X-ray did not show any changes in my right leg. Instead, it revealed an enlarged inflammatory area with infiltration in my left leg. Doctors suspected a malignant bone tumor. Further examinations, including an MRI, contrast-enhanced X-ray, biopsy, and trephine biopsy, confirmed their concerns: a malignant tumor of the bone and soft tissues – Ewing sarcoma.

Unfortunately, this was not the end of the tests and difficult news. The final examination (PET scan) revealed a lesion on the L3 vertebra with infiltration between L3 and L4, as well as an affected lymph node in the groin area. Treatment began immediately at the Department of Pediatric Oncology at the Central Clinical Hospital of the Medical University of Łódź (CSK CKD). The treatment plan includes 9 cycles of chemotherapy, consisting of 5 different chemotherapy agents. The goal of chemotherapy is to reduce the tumor, which currently measures 20 cm. The next stages of treatment will include surgery to remove the tumor, additional chemotherapy, and radiotherapy. It may also be necessary to use immunotherapy, which is a very expensive form of treatment.

For us, Julian’s parents, the greatest challenge was not the diagnosis itself, but finding the right way to explain everything to our little boy. Julian handled the diagnosis better than we expected. The most difficult information for him was learning that he would not be able to return to school—not this school year or the next one.

It was extremely hard for him to accept that he would no longer see his friends every day or take part in physical education classes. The illness has also taken away his ability to pursue his passions: riding a stunt scooter and breeding spiders. Julian bravely endures every chemotherapy session, although there are days when the side effects of treatment are very difficult for him. The illness has completely changed the life of our family: Julian now spends more time in the hospital than at home.

At times, it is very difficult for the family to manage everyday life, especially because Julian’s sister has been living with a facial capillary malformation for 14 years and also spends a lot of time in hospitals. Despite these challenges, we all try to stay close, support one another, and remain strong together.

"What I miss the most is school, my classmates, and my friends, who I can currently only talk to by phone. I feel sad because of that, as they are a huge source of support for me and I know I can always count on them. I also miss our family trips, but I won’t give up. I will keep fighting to regain my health and return to a normal life," says Julian.

The funds raised will be used for Julian’s continued treatment, medical consultations, and rehabilitation. With your support, we believe that we can help him overcome this disease.

You can make a dedicated bank transfer to support Julian by including "Julian Goliński" in the payment reference and sending your donation to:

PKO BP
Account number: 33 1440 1231 0000 0000 0184 1262

You can also support Julian by making a donation using the SUPPORT button.